Well, it has been a rough week. A week ago we learned that my nephew has a heart problem. On Wednesday, it was diagnosed as Hypoplastic Left Heart Syndrome, which means he will need three open heart surgeries which will leave him with only half of a heart. (see link for explanation- I can't do it justice). On Friday, my sister went into labor and she had him Saturday- sweet little guy must have been waiting for me to show up so he could arrive! He went straight to the NICU and they told us that if we had not found out about his condition just a few days prior he would not have lived because he was affected so quickly. On Sunday he underwent emergency surgery because his lungs were filling up with fluid. Finally, the last few days have been better...
We really were not prepared for this so it has been a lot to grasp at once. She had an otherwise uneventful pregnancy and normally this is caught at the 20 week ultrasound. Thankfully, her doctor does a later one, unlike most around here. God must have a plan for this little warrior, so please keep on praying for him.
My sister has been absolutely amazing. She handled 40 hours of labor with no drugs and she maintains a positive outlook. I am awestruck by her strength and I love her, no matter what we have been through.
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